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This information is not intended as a substitute for professional healthcare and is not intended to replace the evaluation of a healthcare professional. No responsibility is accepted for clinical decisions arising from use of this tool. Always consult with a healthcare provider for advice concerning your health. Only your healthcare provider can determine the medical recommendations for your neurological condition. Do not disregard professional medical advice or delay seeking advice or treatment because of something you have read here.
Epilepsy and pregnancy are important because it is one of the few illnesses that require continuous treatment during pregnancy. Once you are pregnant it is more important to control your seizures to avoid injury to you and your baby.
In the general population, there is a 1-2% chance that the child can have major birth defects. For women with epilepsy, this risk goes up to 2-8%. These birth defects can include heart defects, spinal cord defects like spina bifida, or facial defects like cleft lip or palate. Fetuses/babies exposed during the first 10-12 weeks of development are at the greatest risk. Fortunately, some birth defects can be identified with early ultrasounds performed at 15-18 weeks of pregnancy. Your doctor may also identify these defects after birth. Drug exposure later in the 2nd or 3rd trimester, specifically with valproate, may also be associated with a slightly higher chance of children developing behavioral problems such as autistic spectrum disorder or learning disabilities.
It is also shown that women with epilepsy naturally have lower folate (folic acid) levels in their blood. Folate (folic acid) is very important for brain and spinal cord development. Some of the medications used for seizure control can decrease folate and increase the risk of birth defects. Though we still need to learn more about how this occurs, it is recommended for women with epilepsy who may become pregnant take folic acid regularly. If you are taking multiple antiseizure medications or higher doses of antiseizure medications, the risk of a major birth defect goes higher.
For most women, there is a greater than 95%-97% chance of having a baby without a major birth defect. You should discuss family planning goals with your doctor before getting pregnant, and depending upon your type of seizure they will help you choose the safest medication at the lowest dose and effective dose for seizure control. Ideally, changing medications is not recommended during pregnancy as it may cause your seizures to return or worsen. Medication changes should be done as part of pre-pregnancy planning with your doctor. Never stop taking medication on your own without consulting your doctor as this can cause life-threatening seizures.
During pregnancy, your body changes. You gain weight and retain more water. As well, your kidneys and liver work at higher rates. These things, along with many changes in pregnancy can cause your medication levels in your blood to lower, sometimes at such low levels that seizures can return. Each medication and person is different and it is important to speak with your doctor about what your risks are and how best to prevent this from happening. Sometimes your doctor can monitor the levels of medications in your blood before and during pregnancy. They might increase the amount of medication you take to ensure that your seizure medication blood levels do not drop too low. In general, women are at the greatest risk for seizures occurring when their drug blood level in pregnancy decreases by more than a third. As an example, if your pre-pregnancy blood level is “100”, during pregnancy, if your blood level falls to “67” or lower, your doctor may increase your medication dose to prevent your blood levels from falling further*. *The numbers used are only used as an example, and should not apply to your specific situation without discussing it with your doctor.
Fortunately, the overwhelming majority of women with epilepsy give birth to healthy babies. There are increased risks but working closely with your doctor can help minimize those risks. A recent study showed that women with epilepsy during pregnancy had similar risks of seizures as women with epilepsy who are not pregnant, as long as their medications were monitored and doses were adjusted during pregnancy (Pennell, 2020).
In this web-based tool, we discuss antiseizure medications, risks of birth defects and developmental delays, as well as medication monitoring during pregnancy. This data is based on pregnancy registries around the world including the North American Registry, the European Registry, and others (link). As some medications are used more than others, still more data is required for future guidance of these medications and their safety during pregnancy.
Disclaimer: Some safety considerations/recommendations provided in this web-based tool are based on limited studies and current best evidence. This web-based tool must not be used as the sole base of decision-making in the use of medicines during pregnancy. Expert health care provider consultation with epilepsy specialists/neurologists/obstetricians is required throughout the process of change, as decisions should be based on an individual’s specific circumstances.
Resources:
- https://www.ilae.org/patient-care/epilepsy-and-pregnancy
- Management of epilepsy in pregnancy: a report from the International League Against Epilepsy Task Force on Women and Pregnancy Torbjörn Tomson 1, Dina Battino 2, Rebecca Bromley 3, Silvia Kochen 4, Kimford Meador 5, Page Pennell 6,Sanjeev V. Thomas
- Epilepsy and Pregnancy
- CONTINUUM (MINNEAP MINN) 2022;28( 1, NEUROLOGY OF PREGNANCY):34– 5 4 . American academy of neurology By Yi Li, MD, Ph.D.; Kimford J. Meador, MD, FAAN, FAES, FRCPE
- Pennell PB, French JA, May RC, Gerard E, Kalayjian L, Penovich P, Gedzelman E, Cavitt J, Hwang S, Pack AM, Sam M, Miller JW, Wilson SH, Brown C, Birnbaum AK, Meador KJ; MONEAD Study Group. Changes in Seizure Frequency and Antiepileptic Therapy during Pregnancy. N Engl J Med. 2020 Dec 24;383(26):2547-2556